SharePoint

Skip Navigation LinksHome

​Senior representatives from organizations across Canada are working together as the Pan-Canadian Real-world Health Data Network (PRHDN) to develop a proposal to create a SPOR National Data Platform

​​​​​​​​​​​​​​​​​​​  


Existing data assets and expertise mean that the Canadian glass is already almost full when it comes to world-class multi-province health research data infrastructure. Closing this gap is a collective responsibility. 

Our curret priorities respond to priorities of SPOR-funded research and researchers more broadly, and to expectations as outlined by CIHR in their funding call. These are:


• Developing and validating consistent variable definitions to facilitate multi-jurisdictional research. These definitions or algorithms could be for chronic diseases, for concepts like continuity of care, or for utilization like primary care visits.
• Developing technical infrastructure for storage, and re-use of those algorithms, as a way to increase transparency and efficiency and ensure sustainability
• Creating a data access support system to help researchers who are making cross-provincial requests
• Establishing strong connections, including to patients and the public and Indigenous communities
• Working towards shared analytic infrastructure
• Expanding to accommodate new data (e.g. genomics, free text, imaging, patient-reported) and new methods (e.g. machine learning, artificial intelligence, Natura Language Processing)​


Our goal is to design research data infrastructure that is useful and transformative for Canadian researchers and policy/decision makers and ultimately the public. We welcome your input. Please mail ​prhdn@prhdn.ca to find out more, or click here ​to provide suggestions or become a member of the PRHDN Consortium.

​​

 

​​
If you are a researcher or policy/decision maker interested in being invol​​​ved in PRHDN development and using PRHDN research data infrastructure in the futu​​re, please cl​ick hereto become a member of the PRHDN Consortium.​
​​​PRHDN News:
The PRHDN Leads Team has expanded its membership further, see "Contact Us​" for details.  The results of the first survey of PRHDN Consortium members on priorities have been compiled and are available under "Downloadable Documents."  Many thanks to those who responded.​
​ ​
  
  
  
PRHDN CAHSPR Abstract 2016.pdf
  
5/9/2016 6:36 AM
PRHDN Overview 5Nov15.pdf
  
11/5/2015 8:20 AM
Results of Survey of Priorities for PRHDN Implementation Plan.pdf
  
11/3/2015 1:29 PM
CMAJ Rx for data-rich, access-poor researchers.pdf
  
8/20/2015 10:37 AM
PRHDN-Primary Care NOI 21May15.pdf
  
8/20/2015 10:37 AM
PRHDN Glossary 7May15.pdf
  
5/7/2015 6:09 PM
​​