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​​​​​Senior representatives from organizations across Canada are working together as the Pan-Canadian Real-world Health Data Network (PRHDN) to develop a proposal to create a SPOR National Data Platform​

Existing data assets and expertise mean that the Canadian glass is already almost full when it comes to world-class multi-province health research data infrastructure. Closing this gap is a collective responsibility. ​

Our curret priorities respond to priorities of SPOR-funded research and researchers more broadly, and to expectations as outlined by CIHR in their funding call. These are:

  • Developing and validating consistent variable definitions to facilitate multi-jurisdictional research. These definitions or algorithms could be for chronic diseases, for concepts like continuity of care, or for utilization like primary care visits.
  • Developing technical infrastructure for storage, and re-use of those algorithms, as a way to increase transparency and efficiency and ensure sustainability
  • Creating a data access support system to help researchers who are making cross-provincial requests
  • Establishing strong connections, including to patients and the public and Indigenous communities
  • Working towards shared analytic infrastructure
  • Expanding to accommodate new data (e.g. genomics, free ​text, imaging, patient-reported) ​​​​and new methods (e.g. machine learning, artificial intelligence, Natura Language Processing)​

Our goal is to design research data infrastructure that is useful and transformative for Canadian researchers and policy/decision makers and ultimately the public. We welcome your input. Please email ​prhdn@prhdn.ca to find out more or to become a member of the PRHDN Consortium.

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If you are interested in hearing about PRHDN developments and/or using PRHDN research data infrastructure in the futu​​re, please email prhdn@prhdn.ca to become a member of the PRHDN Consortium.​
​​​PRHDN News:
On April 17, 2018, the PRHDN Team registered that we will submit a proposal in response to the CIHR call for a SPOR National Data Platform.    
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PRHDN national data platform consultation deck April 2018.pdf
  
4/28/2018 6:41 PM
PRHDN CAHSPR Abstract 2016.pdf
  
5/9/2016 6:36 AM
PRHDN Overview 5Nov15.pdf
  
11/5/2015 8:20 AM
Results of Survey of Priorities for PRHDN Implementation Plan.pdf
  
11/3/2015 1:29 PM
CMAJ Rx for data-rich, access-poor researchers.pdf
  
8/20/2015 10:37 AM
PRHDN-Primary Care NOI 21May15.pdf
  
8/20/2015 10:37 AM
PRHDN Glossary 7May15.pdf
  
5/7/2015 6:09 PM
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